The use of this Mastocytosis Society Canada (“MSC”) website is subject to the following terms of use:


Disclaimer


The content of this website is intended to offer general information about Mastocytosis and related diseases. It is not intended as a substitute for the knowledge, expertise, skill, and judgment of physicians, pharmacists, and/or other health-care professionals in patient care. None of the information contained in this web site is intended to be used for decisions on diagnosis or treatment. Questions and concerns regarding diagnosis and treatment should be directed to a health care professional. If you have a health concern, see your doctor. If this is an emergency, dial 911 or visit your nearest emergency department. This website is not and should not be considered medical advice. Visitors to this site should not engage in self-diagnosis. SEE YOUR DOCTOR.
Neither MSC nor any third parties warrant the accuracy, timeliness, performance, completeness or suitability of the information and materials on this website for any particular purpose. The absence of a warning for a given drug or combination of drugs does not imply that the drug or combination of drugs is safe, appropriate or effective in any given patient. The listing of a product on this website does not constitute endorsement of the product by MSC. Failure to list a product on the website does not imply that MSC disapproves of the product. You acknowledge that such information and materials may contain inaccuracies or errors and MSC expressly excludes liability for any such inaccuracies or errors to the fullest extent permitted by law.
While MSC periodically updates the information contained herein, new products and research findings may come to light which are not listed or accounted for here. Some of the products listed may no longer be available, and changes in the names of manufacturers and products may have occurred since this information was compiled.
The content of this website is subject to change without notice.

Copyright


This website contains material which is owned by or licensed to MSC, including but not limited to, the design, layout, look, appearance and graphics. Reproduction is prohibited other than in accordance with the copyright notice, which forms part of these terms and conditions. No content on this website may be reproduced in any form on any media format or be stored without written approval from MSC, with the exception of use with intent to educate or share information about Mastocytosis or mast cell disorders. This website may also include links to other websites. These links are provided for your convenience to provide further information. They do not signify that we endorse the website(s). We have no responsibility for the content of the linked website(s). You may not create a link to this website from another website or document without the prior written consent of MSC. Your use of this website and any dispute arising out of such use of the website is subject to the laws of Canada.

Privacy


Mastocytosis Society Canada is committed to respecting and protecting your privacy. Our privacy policy is based on our adherence to both the guidelines and principles in relevant legislation and our commitment to ensuring that you are comfortable when providing personal information to us.

In general, you can visit our website without revealing any personal information about yourself. Our web server does log generic information from you each time you visit our page such as the average time spent on the site, pages viewed, type of web browser and date and time visited, etc. This information is used to measure the use of various portions of our website and assist us in making any improvement.

Any personal information provided to us by visitors to our website(s) will be kept by us and will not be provided to any third party. You have complete control over your personal information and do not have to share it with us unless you choose to do so.

Any privacy concerns can be addressed to: info@mastocytosis.ca


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Welcome to the MSC Blog

MSC will be publishing a weekly blog full of information to help support and guide patients through their mast cell journey.  

Check it out!

 

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Help celebrate Rare Disease Day 2020

Please help us raise awareness among the general public and decision-makers about rare diseases and their impact on patients' lives.

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Watch:  Emotional and Psychological Coping Process of People Living with a Chronic or Rare Disease

Recordings are now available in English and French!

Join Annie Perreault, M.A. Psy, as she presents this serious and playful presentation that offers coping strategies for people living with a rare or chronic condition.

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Learn more about mast cell disease

A diagnosis or even a suspicion of one can often be overwhelming. Learn more about mast cell disease and begin taking an active role in your health care.

Learn More


English

Mastocytosis, one of the mast cell diseases, is a rare disorder of both children and adults caused by the presence of too many mast cells (mastocytes) and CD34+ mast cell precursors.
Français

Mastocytosis, one of the mast cell diseases, is a rare disorder of both children and adults caused by the presence of too many mast cells (mastocytes) and CD34+ mast cell precursors.

Our Board of Directors and volunteers live in different provinces across Canada.  We have active volunteers in Alberta, Saskatchewan, Manitoba, Ontario, Quebec and Nova Scotia.  

Our board members and officers can be reached by emailing info@mastocytosis.ca.

MSC Mailing Address:

Mastocytosis Society Canada
4305 Preston Crescent
Regina, Saskatchewan
Canada
S4X 0C9

Contact Form 

    


Mastocytosis Society Canada (MSC) is a registered Canadian charity.  

MSC was created to assist patients, caregivers and health care professionals learn more about mast cell disorders and to lean on each other for support. The audience we support is quite diverse and includes:

  • newly diagnosed patients,
  • patients in search of a diagnosis,
  • caregivers of young children or elderly parents with mast cell concerns and
  • health care professionals who are trying to provide the best health care they can to their mast cell patients.

Around the world, and in Canada, there seems to be a growing number of patients being diagnosed with mast cell disorders such as Mastocytosis and Mast Cell Activation Syndrome (MCAS). Often times, these patients have never heard of this diagnosis and immediately take to researching it on-line. MSC is here to support these patients by:

  • Helping them understand the facts about mast cell disorders and the triggers and symptoms that many patients experience.
  • Helping them find a health care professional with knowledge and experience with mast cell disorders close to their location.
  • Providing them information on diagnostic testing, medications and other questions to ask their health care professionals.
  • Suggesting ways to help improve their quality of life through diet, eliminating triggers and managing their environment.
  • Creating educational curriculums for patients and health care professionals to help educate and raise awareness of mast cell disorders to speed up diagnosis and improve quality of patient’s lives.

Although MSC is mainly focused on providing support to Canadian residents, we are happy to extend that support to patients around the world who are suffering from this debilitating disease.


Vision

To live in a world where those who suffer from rare disease get the help and support they need.

Mission

Mastocytosis Society Canada is a global leader in the education and support of those who are managing mast cell disease. We are the first choice of patients, caregivers and health care professionals who are seeking knowledge and advice about Mastocytosis and Mast Cell Activation Syndrome (MCAS). We seek to improve the quality of life for all patients suffering from mast cell disease.

Values

Respect - Every patient, caregiver and health care professional deserves our respect. We respect their opinions, their situations and their privacy.

Compassion - Every person who seeks support from MSC will receive empathy, compassion and understanding for their unique situation. We will help and support them to the very best of our ability.

Competence - We are volunteers and do not provide medical advice. However, we will seek to be as knowledgeable as possible to provide the best support we can.

Teamwork - No one is capable of doing it all, therefore we commit to working together as a team of volunteers to achieve our goals and objectives.


MSC is focused on several key initiatives to help meet our key objectives and provide the best support we can.  

  1. Medical Advisory Committee - MSC recently created a Medical Advisory Committee made up of a team of health care professionals (doctors, nurses, naturopaths, dieticians) who will leverage their knowledge and experience to help create health care protocols and assist in raising awareness of mast cell disease within the medical community.  If you are a medical professional and wish to join this committee, please contact us at info@mastocytosis.ca
  2. Educational Programming - MSC is focused on creating programming to help educate patients, caregivers and physicians on mast cell disease.  This programming will focus on key aspects of mast cell disease including diagnosis, treatment, nutrition, etc.  This information will be delivered through a variety of mediums including brochures, website, video, web conference, etc.
  3. Canadian Physician List - MSC continues to focus on compiling a list of physicians across Canada who have knowledge and experience with mast cell disease.  If you require assistance finding a physician in your area, please email us at info@mastocytosis.ca.
  4. Fundraising and Volunteering - Achieving these initiatives requires money and volunteer support.  MSC is continually looking for opportunities to raise money through grants and personal donations.  Please contact us if you would like to volunteer your time or make a donation.