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Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness among the general public and decision-makers about rare diseases and their impact on patients' lives.

Mastocytosis is described as a rare disease, but the exact incidence and prevalence are not known.  According to the Genetic and Rare Disease Information Centre, an estimated prevalence is approximately 1 case per 10,000 people.  Mast Cell Activation Syndrome (MCAS) is thought to be more common but difficult to diagnose, thus often goes under-diagnosed.  

Please help us raise awareness of Mast Cell Disease. Raising awareness improves knowledge and encourages researchers and decision makers to address the needs of those living with rare diseases.  Hopefully, this will lead to better diagnostic testing, improved treatment options and eventually, a cure.  

 

 

You can help raise awareness! 

 


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Visit www.rarediseaseday.org to find fun, clever ways that you can participate in Rare Disease Day 2020! 

As you'll find out, there are many ways to participate. Let's join our efforts to give hope to rare disease patients all over the world!

 

 


  

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Webinar:  Emotional and Psychological Coping Process of People Living with a Chronic or Rare Disease - Thursday, February 27, 2020

Join Annie Perreault, M.A. Psy, as she presents this serious and playful presentation that offers coping strategies for people living with a rare or chronic condition.

Annie will be doing the webinar in both French (7:00pm EST) and English (8:00pm EST).  

Sign up today!

 

 


 

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Change Your Facebook Profile Pic

 Add a frame to your Facebook Profile Pic to support Rare Disease Day.

  1. Go to https://www.facebook.com/profilepicframes.
  2. Search for "MSC Rare Disease" by Mastocytosis Society Canada.
  3. Choose the frame and adjust as necessary.
  4. Click Use as Profile Picture. 

 

 


  

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Share your story!  We can drastically increase awareness of mast cell disease by telling others our story.  By sharing our story, we can:

  • help other patients feel they are not alone on this journey.
  • help our friends and family know what it's like to live with a rare, often debilitating disease.
  • help government officials and decision makers understand how they can improve health care for those with rare disease.  

Please share your story with us at info@mastocytosis.ca.  With your permission, we would love to feature your story on our blog, or here on our website.  

 

 


 

Donate

 

Share our Facebook Fundraiser

Please help us fundraise so we can continue to raise awareness about Mast Cell Disease among patients, caregivers, health care professionals and other important decision makers.  

Share our fundraiser on your Facebook page or visit our website for other ways to donate.

 

 


 

Unique Charm Copie

 

Purchase a Mast Cell Awareness Charm

Help raise awareness by purchasing and wearing your Mast Cell Awareness charm!  
 
These beautiful charms are a great conversation starter and provide a unique opportunity to raise awareness about mast cell disease.  Purchase a charm, keychain or bracelet for anyone who might be impacted by mast cell disease.  They're sure to wear it proudly!

 

 


 

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Subscribe to our MSC Blog!  Recently, we began publishing blog posts with helpful information on research from industry experts, understanding mast cells, nutrition and food sensitivity, patient stories and living with mast cell disease.  

Of course we want you to subscribe to our blog, but we strongly encourage family and friends to sign up as well.  This information is very helpful in raising awareness of mast cell disease and proving others with a glimpse into what it's like living with a rare disease.  

Please subscribe here!