Mastocytosis Society Canada

**NEWS** Dr. R.Gary Sibbald and Dr. Afsaneh Alavi have prepared an International Patient Survey to help establish best practice guidelines for Mastocytosis, Mast Cell Activation Syndrome, and Idiopathic Anaphylaxis in Canada.

The survey will be available online for patients and caregivers to complete from January 15-31, 2012. Each survey participant will have a unique identifier for their individual survey. We need your input and participation if you are a patient or caregiver. Please email us at info@mastocytosis.ca stating your name and province/territory/state and country. We will provide you with a direct link to your individual survey online on or before January 15, 2012.

View, share/distribute and download our detailed official announcement here.

Our organization was informally founded in 2003 as an online support group called Canada Mastocytosis Support. In 2009 we incorporated as a federal non-profit with a new name, Mastocytosis Society Canada (MSC).

We are the leading mastocytosis organization in Canada, committed to helping people with Mastocytosis and related mast cell disorders by:-

Providing support & information to Canadians dealing with mastocytosis
Educating patients, caregivers, and medical professionals about mastocytosis
Advocating for improved diagnostic tests, medical treatments, emergency & surgical care
Increasing awareness of mastocytosis and its impact on patients and their supporters

**Must read research papers and letters available for download and sharing below:-

MSC Article 2010: Mastocytosis Patient Experience Letter (PDF)

MSC Research Paper 2009: Thousand Faces of Mastocytosis, Mistaken Medical Diagnoses, Patient Suffering and Gender Implications (PDF)

AFFIRM Research: France - Patients' Perception of Disability in Mastocytosis (PDF)

Contact us: info@mastocytosis.ca.

Join our Support Forum Online or visit our photo series at Flickr.

We need your help. Please DONATE and/or JOIN today!